in case you were having any qualms about the whole twitter bomb thing— remember this video clip from a movie produced by Autism $peaks. It’s about a mum who talks about considering a murder and suicide with her and her Autistic daughter IN FRONT OF HER OWN DAUGHTER and saying that the “only reason” she didn’t do it was because of her ‘normal’ NT daughter.
It’s called Autism Everyday.
And this was available on the Autism Speaks Youtube channel for a long time. I don’t think it was deleted (finally) until this past year sometime. I know because my masterpost used to link to the A$ Youtube, but now I have to use an alternate video source.
Disgusting. And this woman runs the Autism Science Foundation, so be aware of that, as well.
I get that you’re trying to be helpful or nice or something
but disabled is not a bad word. It’s not an insult, it’s not un-pc (or whatever the fuck) , it’s doesn’t mean un-able so much as prevented-from-being-able
As in society is set up to ignore the needs of people with disabilities.
If disabled people choose to self identify with differently abled, or disAbility, or whatever pc nightmare some well meaning able-bodied NT made up, that’s fine. But just like you shouldn’t apply a sexuality or gender label to someone without asking them first, don’t invalidate disabled people by policing word choice.
I spent years running from the “disabled” title despite my disabilities, because I associated it with many negative stereotypes. And every time someone says “it’s not disabled it’s _____” you are intimating that ‘disabled’ is a bad word, and something to be ashamed of, and that’s complete and utter hokum.
Also I feel like it creates an environment where I have to be able to do something, even if it’s different. There are things I literally cannot do and that’s ok too.
and like… being able to focus on the things you *can* do instead of the things you *can’t* do… is basically the definition of being nondisabled isn’t it? if the things i couldn’t do were so insignificant that they weren’t worth being a significant part of my identity, i wouldn’t be disabled. so when you’re telling people to focus on what they *can* do you’re often telling them “just pretend to be normal like the rest of us.”
This is Proloquo4Text, an AAC program for iOS devices. It does only text, unlike Proloquo2Go, and stays on a single page. It has word prediction, sentence prediction, and a side panel of pre-written words and sentences.
It’s cheaper than Proloquo2Go. For the moment, it’s US $64.99, €59.99, AU $69.99, and £44.99. Starting December 31st, it will be twice that amount. This is similar to the discount offered Proloquo2Go users in the beginning (which is when I got my copy of Proloquo2Go).
You might be interested in this if you need AAC with good word prediction and high quality voices, but not have to pay for picture symbols you’re never going to use.
The colors and fonts are customizable. It doesn’t have to have a brown background or Avenir fonts, that’s what I did to it.
I’m using it for my word-based communication and Proloquo2Go for my picture-based communication because it has always been hard for me to switch between picture and word modes on Proloquo2Go. (A cognitive problem, not a fault of the program.)
(via realsocialskills)Source: youneedacat
Video is a teacher talking to a classroom of deaf students.
Teacher: I want to talk about language today. When a child is born, what is the first thing the parents hear in the hospital?
Student: “Your child failed the hearing test.”
Teacher: Right. A baby is five hours old and he’s failed something already? What about the term “hearing loss”? What does that word evoke?
Student: Hearing is the norm. Deaf is less than. Lacking.
Teacher: Are we “less than”? Do you believe being deaf has taken away or added to your life? If someone invented a pill you could take it tonight and you would wake up hearing how many of you would take it? *looks around the room* None of you. Why not?
Student: Because being deaf gives you friends anywhere you go.
Student: And a way of seeing the world that’s different from anyone else.
Student: Hearing kids don’t know who they are. We do. We’re deaf: first, last, always.
Student: Hearing people think they have more than us…their lives are better. We have it so “hard.” But I’d never give up being deaf to be like anyone else. Never.
Teacher: Not hearing loss. Deaf gain.
Note: Please keep this transcript when you reblog this so that blind people (blind people use screen readers) are able to know what the video was talking about.
(via goldenheartedrose)Source: queerability
Why am I anti Autism Speaks?
You are probably thinking ”Isn’t all the exposure they give to autism a GOOD thing?” Well no.. not the way they do it and not for the reasons they do it.
I often hear from many people that any awareness is good awareness, I’m sorry but that is WRONG. Autism Speaks does not promote awareness, acceptance or even better lives for people living on the autism spectrum. They promote pity and fear of autism so you will donate money to their organization. Autism Speaks refers to autism as a crisis and epidemic. They constantly and consistently talk about autistic people being burdens and diseases.
Autism Speaks talks about how autistic people cause broken homes, divorces and how autism families are not living.They claim people with autism are lost. They promote obliteration and extinction of a type of people with their research for a “cure”.
They refuse to listen to and include the voices of autistic people.
If you don’t believe any of what I have said, read the following article and don’t just stop at the article, read the comments that go along with it.
They often use inflated stats to scare parents into joining in on their fundraisers; fundraisers where only 3 to 4 cents on every dollar earned actually goes towards helping the community in the form of grants which are not as accessible as the organization makes it out to be. The rest of the money they collect through fundraising and donations is used to pay cushy salaries and research for cause and cure.
Autism Speaks does not speak or even care for your child, my child, myself or my autistic friends. Autism Speaks wants to eradicate us. Autism speaks wants to use our situations to line their pockets and they want to do it without the voices of the people they claim to want to help.
Myself, my son and all autistic people DESERVE better representation. Autism Speaks should NOT have the monopoly on speaking out on what autistic people need… we damn well know what we need, let us speak for our self.
Nothing About Us Without Us!
(via yesthattoo)Source: eccentrickimmy1
Today seemed like a good day to repost this.Autism Speaks is the most well-known autism charity. They have the most media coverage and are endorsed by many celebrities, but this certainly does not make them a good organization.
- Autism Speaks does not have a single autistic member on their board.
- Autism Speaks only spends 4% of their budget on “family services”.
- Much of Autism Speaks’ money goes toward research, and much of that research centers on finding a way to eliminate autism, and thus, autistics (which will likely be done through a prenatal test, in the same way that the Down’s Syndrome test is conducted).
- Autism Speaks produces advertisments, small films, etc. about what a burden autistic people are to society.
- Autism Speaks was responsible for “Autism Every Day”, which featured a member of their board talking about contemplating murder-suicide of her daughter in front of her daughter. This has now be removed from Autism Speaks’ Youtube channel.
- Autism Speaks is responsible for the atrocity known as “I am Autism”, a short film produced by the same person who directed the 3rd Harry Potter movie (yes, really) and features an ominous voice saying things like “I am autism…I know where you live…I work faster than pediatric AIDS, cancer, and diabetes combined…I will make sure your marriage fails.”
In short, Autism Speaks is a very large part of the problem; they create a stigma that makes it far more difficult for actual autistic people like myself to be heard, to have our opinions matter, and to fall anywhere outside of the “autistic angel” and “screaming, violent, rocking in the corner autistic” stereotypes. In addition, for them, as well as many other organizations (and the media), autism is considered to be a child’s disorder/disability, and you will often hear people say “where are all the adult autistics?” I can’t tell you how many times I’ve heard that in the past 5 years or so. The answer to that is simple! We’re right here in front of you. We may have been misdiagnosed as children with learning disabilities, intellectual disabilities and the like when the diagnoses of autism, PDD-NOS and Asperger’s weren’t as precise (or even existent) as they are now. We may not have been diagnosed at all and simply treated as though our difficulties are our own doing. We vary in where we fall on the spectrum, though functioning labels are gross and you shouldn’t use them.
For further reading, here are a few resources about Autism Speaks:
- Say No to Autism Speaks
- I’m Autistic, But Autism Speaks Doesn’t Speak for Me.
- An Autistic Speaks about Autism Speaks.
- A Chart Regarding Autism Speaks’ Allocation of Funds
- ASAN’s flyer regarding Autism Speaks (this is easily printable and is good for distributing information quickly).
Here are a few other terrible things that Autism Speaks has done recently.
- This woman’s job offer was rescinded after she asked Autism Speaks for accommodations in caring for her autistic son. They refused, and she made necessary accommodations for childcare, but they withdrew her offer anyways.
- Autism Speaks shared the news of Google removing hate speech regarding autistics from Google’s autofill feature, completely erasing any mention of autistic people’s flashblogs having anything to do with the change. It was only after a member of the autism community (and not a parent, but an autistic person themselves) spoke with a reporter about the flashblog and a statement was released to the media that Google decided to make this change.
- Autism Speaks highlighted AAC use, while erasing those those who actually use AAC devices to communicate. The focus was on the caretakers, not on the autistic people themselves. (The attached link has a link to a rebuttal by a nonspeaking autistic person, Amy Sequenzia).
There are a number of corporate partners — big businesses (for the most part) who align themselves with Autism Speaks. This can take many different forms, but in general, you should consider that a purchase to any of these companies may benefit Autism Speaks. The list is as follows (thank you, austryzor):
- ATA Martial Arts
- Bachman Pretzels
- Bob’s Red Mill
- Build A Bear
- Capital One
- Casey’s General Stores
- Continental Accessory
- Dollar General
- Dover International Speedway
- Fashion Bug
- Fox Sports
- Joe’s Crab Shack
- Kid Natural Hero
- Landscape Structures
- Lindt and Sprungli
- Mattress Warehouse
- Med Claims Liaison
- Modell’s Sporting Goods
- Panera Bread
- Pump it Up
- Queens Flowers
- Shoprite Supermarkets
- Sprouts Farmers Markets
- Stadium NEST Fragrances
- Stella & Dot
- The Home Depot
- Total Wine and More
- Toys R Us
- White Castle
Some people have contacted me with requests for what organizations actually do help autistic people. There are a few, in fact, that actually focus on autistic people, and not just autistic children. The final two are actually general disability organizations, and not specific to autism.
The Autistic Self Advocacy Network is pretty much the best choice.
If you have twitter, be sure to use the #boycottautismspeaks on any tweets you make about autism today. Get the word out about this inhumane, murdering, patronizing organization.
Autistics deserve the basic human rights of shelter, autonomy, and life. Don’t let Autism Speaks get away with their disability eugenics.
(via goldenheartedrose)Source: bittergrapes